This is another repost that I pulled from my Goggle Readers (sitting somewhere around 110 blogposts to read through).
This is important to me because whenever I or my family goes anywhere, it feels like a logistical, strategic operation bordering along the lines of an international intrigue-laden Hollywood movie.
Did you get the boarding passes and seat designations online? Where are the CPAP machines? Everyone has their meds packed? Where are we staying? Are they green, organic and scent-free?
This is just the beginning for this site, but I hope to be able to blog about this a year from now and see that it has morphed into something fantastic that I can take advantage of on a regular basis.
Check it out. Click the title to go to my blogposter's site.
Life is not easy. Especially when you are in a family of invisible illnesses and disabilities. It can be serious, funny and downright hard! But we make it. Just like everyone else. We just do it in a different style.
Friday, February 20, 2009
Repost: General Hysteria's Post of the Mom Song
One of my newest blog buddies posted this on her site and I am doing a reposting because I love this song so much!
Funny thing, my kids love to stand behind me and watch it with me. You would think they heard it enough during the day that they wouldn't want to hear it in stereo with a musical accompaniment.
Anyway, as General Hysteria say, if you haven't seen it enjoy. If you have, enjoy again! I second that motion.
Click the title link to go to her website and listen to the song.
Funny thing, my kids love to stand behind me and watch it with me. You would think they heard it enough during the day that they wouldn't want to hear it in stereo with a musical accompaniment.
Anyway, as General Hysteria say, if you haven't seen it enjoy. If you have, enjoy again! I second that motion.
Click the title link to go to her website and listen to the song.
A Post About Friends
Today, I tried to visit some of my other social communities. School being what it is, I cannot even get near Twitter or Facebook. It takes up too much time and I find I am stuck there.
But, today in my perusals of posts and comments, I came across a devotional from a new person that I have not made friends with so far. She spoke about becoming the type of friend that survives changes and really gets to know one another.
Here is her post:
VERSE:
A man that hath friends must shew himself friendly: and there is
a friend that sticketh closer than a brother.
-- Proverbs 18:24
THOUGHT:
Close spiritual friends -- the kind that can hold us accountable
when we need it, build us up when we're down, or celebrate with us
when we've enjoyed success -- are truly rare. So many people are
lonely; they're lonely for something, or better yet, someone,
they've never experienced. We have a tendency in modern western
culture to have acquaintances and companions instead of friends and
partners. When things go poorly, when we have nothing to offer to
them, acquaintances can run away in times of trouble or fade away
if things are long and protracted. There are, however, true friends
whose commitment and dedication are deeper than even physical
family. How do I know? God promised it! I've seen it! My family has
been blessed by it! So let's hear the call to be that kind of
friend to others and in so doing, we will often find that kind of
friend for ourselves.
PRAYER:
Gracious and holy Father, thank you so much for calling me into
your family. Please bless me as I seek to enter into meaningful
friendships with those in your family. In Jesus' name I pray. Amen.
In this fast and furious world of twittering, facing up on Facebook, Digging it all and remaining Linkedin, I am stopping to ask: Are you really getting to know some of these people? I understand networking possibilities, but are these people you can go to if something catastrophic happens? You may say, I have my family and close friends for that. My point exactly.
My goal is to make a least some of the people I converse with for hours close friends. What is the point of investing so much time if I don't get to that point with somebody?
In the end of our lives, will our Twitter friends be there or our real friends?
Let's endeavor to deepen some of these relationships beyond 140 characters.
But, today in my perusals of posts and comments, I came across a devotional from a new person that I have not made friends with so far. She spoke about becoming the type of friend that survives changes and really gets to know one another.
Here is her post:
VERSE:
A man that hath friends must shew himself friendly: and there is
a friend that sticketh closer than a brother.
-- Proverbs 18:24
THOUGHT:
Close spiritual friends -- the kind that can hold us accountable
when we need it, build us up when we're down, or celebrate with us
when we've enjoyed success -- are truly rare. So many people are
lonely; they're lonely for something, or better yet, someone,
they've never experienced. We have a tendency in modern western
culture to have acquaintances and companions instead of friends and
partners. When things go poorly, when we have nothing to offer to
them, acquaintances can run away in times of trouble or fade away
if things are long and protracted. There are, however, true friends
whose commitment and dedication are deeper than even physical
family. How do I know? God promised it! I've seen it! My family has
been blessed by it! So let's hear the call to be that kind of
friend to others and in so doing, we will often find that kind of
friend for ourselves.
PRAYER:
Gracious and holy Father, thank you so much for calling me into
your family. Please bless me as I seek to enter into meaningful
friendships with those in your family. In Jesus' name I pray. Amen.
In this fast and furious world of twittering, facing up on Facebook, Digging it all and remaining Linkedin, I am stopping to ask: Are you really getting to know some of these people? I understand networking possibilities, but are these people you can go to if something catastrophic happens? You may say, I have my family and close friends for that. My point exactly.
My goal is to make a least some of the people I converse with for hours close friends. What is the point of investing so much time if I don't get to that point with somebody?
In the end of our lives, will our Twitter friends be there or our real friends?
Let's endeavor to deepen some of these relationships beyond 140 characters.
Thursday, February 19, 2009
Calling on Some Guest Bloggers
Coming out from under schoolwork for a hot minute, I realized that I haven't posted in over a week. Not that there haven't been things to talk about. I just returned from a President's weekend in North Carolina. Had the time of my life! That is what happens when you don't take the hubby and kids and stay with a single person. The only drawback is that their refrigerator looked like it belonged to a single person! I probably lost weight on that vacation.
I have decided on a few things for my future studies, and I could talk about that, but right now, it is coming down to the wire for my classes.
If none of you are familiar, University of Phoenix sets you up to take two classes at a time for nine weeks. Those last 2-3 weeks are a killer. Right now, I am working on final projects AND working on individual assignments due throughout the week. My fingers are tired, and my eyes have given out on my at least twice now. I stave off the migraines with Aleve and ibruprophen, but haven't been able to come in here and post anything.
So, I am opening up my blog to guest bloggers. I would love to showcase some other of my new found friends and followers. It could be any subject, though you know I tend to talk about family matters, dealing with disabilities, assistive tech, etc.
I would love to have some contributors. So, if you are interested, please drop me a comment or an email.
In the meantime, I will try to post again soon. I am in Week 7 and there is 2 more to go.
I have decided on a few things for my future studies, and I could talk about that, but right now, it is coming down to the wire for my classes.
If none of you are familiar, University of Phoenix sets you up to take two classes at a time for nine weeks. Those last 2-3 weeks are a killer. Right now, I am working on final projects AND working on individual assignments due throughout the week. My fingers are tired, and my eyes have given out on my at least twice now. I stave off the migraines with Aleve and ibruprophen, but haven't been able to come in here and post anything.
So, I am opening up my blog to guest bloggers. I would love to showcase some other of my new found friends and followers. It could be any subject, though you know I tend to talk about family matters, dealing with disabilities, assistive tech, etc.
I would love to have some contributors. So, if you are interested, please drop me a comment or an email.
In the meantime, I will try to post again soon. I am in Week 7 and there is 2 more to go.
Tuesday, February 10, 2009
Dave Hinsburger's Post - BHM-Black History Month
Yes, another reposting.
This one hit me square in the eyes.
For one, it is Black History Month and I have made no mention of it so far. And, two, I didn't get a single question correct. Not one! Okay, there goes my credibility in disability history. I am really still learning.
To be in all fairness, this kind of subject does NOT appear anywhere in the historical, social or psychological studies I have been exposed to, and, also, haven't come across any books.
This post has opened a whole new area of interest for me. I intend to remain ignorant for only a short time longer.
Go to the site and take the test. See how well you do. Post your comments when you have a chance.
This one hit me square in the eyes.
For one, it is Black History Month and I have made no mention of it so far. And, two, I didn't get a single question correct. Not one! Okay, there goes my credibility in disability history. I am really still learning.
To be in all fairness, this kind of subject does NOT appear anywhere in the historical, social or psychological studies I have been exposed to, and, also, haven't come across any books.
This post has opened a whole new area of interest for me. I intend to remain ignorant for only a short time longer.
Go to the site and take the test. See how well you do. Post your comments when you have a chance.
25 Random Things About Sleep
National Sleep Federation's version of the tag game.
Couldn't pass this oppty to send along some important info and continue to play the tag game. Now, it is your turn! Find 25 Random Facts about your favorite subject (or passion and post them!
Couldn't pass this oppty to send along some important info and continue to play the tag game. Now, it is your turn! Find 25 Random Facts about your favorite subject (or passion and post them!
Where Did That Blog Name Come From?
After reading an intriguing post at General Hysteria, I mentioned in my reply that I would write a post about where this blog name came from. Please read her post first, because it sets the stage for my post.
I joined in with General Hyteria on how hard life has become, the unfairness of it all, and the inevitable feeling of inadequacy. Oh, how I know how that feels!
There were so many times that I wondered where exactly had I gone wrong. Where had I made the turn that brought me to the spot and circumstances I found myself in now. Was it really a wrong move or was I just whining about my life when so many others had it harder? Was I just not able to buck up, put my big girl panties on (my sister loves that phrase!) and deal with it? Apparently, I wasn't, until I had an Epiphany of sorts of my own-in my favorite epiphany-happening place-the shower.
I will not forget that morning. I probably only had a couple of hours (2-3) of sleep, due to hubby's seizures and sleep apnea, young son's insomnia and the fact that after a year of marriage, we were in foreclosure.
I have to admit, I don't take financial instability well. I will go/have gone without food to save on the food bill, while I watch my kids eat. I will go/have gone without new clothes while providing SOMETHING new for the next school year. So, first and foremost on my mind that morning, was what in the world was I going to do?
Talking to God becomes a past-time when you are a single parent of special needs kids.
You tell Him everything, including your rants. He takes it and usually an answer comes floating down the timeline that makes you really know there is someone greater than yourself out there. You come to realize you can really connect this random circumstance to your rant/prayer.
That morning, I was railing, crying and extremely angry with the Powers That Be. My mind kept going back to several weeks earlier, when everyone thought I was having a nervous breakdown, because I woke from a bad dream and literally screamed and cried for 45 minutes. I remember being paralyzed by fear after that dream. Fear of failing, losing our home, being homeless again (another post for another day), and having to explain to two sets of trusting eyes what Mom was going to do; how Mom was going to save the day again.
And there I stood in the shower, feeling the emotions well up again and threaten to take me over. Sobbing, I yelled into the tile,
"What do You have in store for me now? Why are You doing this to me? Did I EVER suggest that I could handle anything like this? Did I EVER give You an inkling that I could be a leader? Are You crazy!??!! I don't want this family! I never asked for this! In fact, if I remember clearly, I wanted/asked for a career. How long do You think I can last like this? And, what am I supposed to do with this bunch of sicknesses, disorders, neurological atypical..."
In the middle of all of that, I swear I heard in my mind, "You have a unique family."
"Unique. Unique! There is no other family like it, are You kidding?"
But, suddenly, I no longer wanted to stay in the shower, under the pelting water. Suddenly, I wanted to get out and do something. At the time, I didn't know what. I barely knew what blogging was. All I had was an email address.
That was nearly a year ago.
I still don't have a plan, really. I just retell our story. I post stuff pertaining to what affects us. Somewhere in here, I believe is my purpose and the purpose of this life I am living. I don't pretend to understand it, get it or even approve of it. I just know that being unique is important to God. It has been important to one or two followers who comment. It has become important enough for me to deal with my days and nights, keep on moving and writing.
I joined in with General Hyteria on how hard life has become, the unfairness of it all, and the inevitable feeling of inadequacy. Oh, how I know how that feels!
There were so many times that I wondered where exactly had I gone wrong. Where had I made the turn that brought me to the spot and circumstances I found myself in now. Was it really a wrong move or was I just whining about my life when so many others had it harder? Was I just not able to buck up, put my big girl panties on (my sister loves that phrase!) and deal with it? Apparently, I wasn't, until I had an Epiphany of sorts of my own-in my favorite epiphany-happening place-the shower.
I will not forget that morning. I probably only had a couple of hours (2-3) of sleep, due to hubby's seizures and sleep apnea, young son's insomnia and the fact that after a year of marriage, we were in foreclosure.
I have to admit, I don't take financial instability well. I will go/have gone without food to save on the food bill, while I watch my kids eat. I will go/have gone without new clothes while providing SOMETHING new for the next school year. So, first and foremost on my mind that morning, was what in the world was I going to do?
Talking to God becomes a past-time when you are a single parent of special needs kids.
You tell Him everything, including your rants. He takes it and usually an answer comes floating down the timeline that makes you really know there is someone greater than yourself out there. You come to realize you can really connect this random circumstance to your rant/prayer.
That morning, I was railing, crying and extremely angry with the Powers That Be. My mind kept going back to several weeks earlier, when everyone thought I was having a nervous breakdown, because I woke from a bad dream and literally screamed and cried for 45 minutes. I remember being paralyzed by fear after that dream. Fear of failing, losing our home, being homeless again (another post for another day), and having to explain to two sets of trusting eyes what Mom was going to do; how Mom was going to save the day again.
And there I stood in the shower, feeling the emotions well up again and threaten to take me over. Sobbing, I yelled into the tile,
"What do You have in store for me now? Why are You doing this to me? Did I EVER suggest that I could handle anything like this? Did I EVER give You an inkling that I could be a leader? Are You crazy!??!! I don't want this family! I never asked for this! In fact, if I remember clearly, I wanted/asked for a career. How long do You think I can last like this? And, what am I supposed to do with this bunch of sicknesses, disorders, neurological atypical..."
In the middle of all of that, I swear I heard in my mind, "You have a unique family."
"Unique. Unique! There is no other family like it, are You kidding?"
But, suddenly, I no longer wanted to stay in the shower, under the pelting water. Suddenly, I wanted to get out and do something. At the time, I didn't know what. I barely knew what blogging was. All I had was an email address.
That was nearly a year ago.
I still don't have a plan, really. I just retell our story. I post stuff pertaining to what affects us. Somewhere in here, I believe is my purpose and the purpose of this life I am living. I don't pretend to understand it, get it or even approve of it. I just know that being unique is important to God. It has been important to one or two followers who comment. It has become important enough for me to deal with my days and nights, keep on moving and writing.
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